Canberra Endometriosis Centre

The Canberra Endometriosis Centre is a multidisciplinary network of health professionals that work in partnership with women and teenagers with endometriosis and their families. The centre provides ongoing support through diagnosis, treatment and long term management of endometriosis.

The Canberra Endometriosis Centre is actively involved in research with focus areas, including period pain, menstrual disturbance and early diagnosis of endometriosis in teenagers; innovative long term self-management of endometriosis and pelvic pain; and the long term impact of endometriosis on women's lives.

Latest News

National Action Plan for Endometriosis

On 26 July 2018 the Minister for Health, Greg Hunt MP launched the National Action Plan for Endometriosis which was a culmination of consumers, politicians, health professionals and a peak body called ACE (Australian Coalition for Endometriosis) all pulling together to create the plan which focuses on three priority areas: 1. Awareness and Education; 2. Clinical Management and Care; 3. Research. The Canberra Endometriosis Centre and Canberra Endometriosis Network (consumer group) were involved in the process of developing the National Action Plan with both the PIPPA screening tool for menstrual disturbance and the innovative nurse-led pathway used through the Canberra Endometriosis Centre being highlighted in the Plan. Nurse/Midwife and Endometriosis Coordinator Melissa Parker has been invited to the Steering Committee that will oversee Implementation of the National Action Plan.

Endometriosis Awareness Month - March 2018

Canberra photographer Margaret Kalms held an event in March for Endometriosis Awareness Month and raised $3000 which she kindly donated to the Canberra Endometriosis Centre’s Research projects. The cheque was handed over at the hospital in an event hosted by the Women’s Centre for Health Matters and attended by Gai Brodtmann MP and Elizabeth Chatham Executive Director at the Centenary Hospital for Women and Children (where the Canberra Endometriosis Centre services are located). Thanks Margaret for your ongoing dedication to women and families managing endometriosis.

The PIPPA Project (incorporating the MDOT Study 2016 and PIPPA validation)

This study has tested and validated a five question checklist called PIPPA (Period ImPact and Pain Assessment) that will help identify young women with problematic period pain and symptoms. This research builds on the original MDOT (Menstrual Disorder of Teenagers) study which surveyed 1051 15-19 year olds about their periods their periods in 2005 and has now been replicated in 2016. We had a phenomenal response from participating colleges and 1066 MDOT and PIPPA questionnaires have been collected from 15-19 year old women and results are being written up for publication. Thanks so much to all the young women who participated and the participating colleges: Narrabundah College, Canberra College and Gungahlin College – you’re awesome!!!

Two research abstracts relating to the PIPPA Project were accepted and posters presented at the World Congress on Endometriosis held in Vancouver, Canada 17-20 May 2017.

Impact of Endometriosis on Women's Lives - research project by ANU PhD Candidate

In January 2015 Maryam Moradi was awarded her PhD (Doctor of Philosophy) through our research on the Impact of endometriosis on women's lives and development of the EIQ (Endometriosis Impact Questionnaire) – a validated tool to measure the long term impacts of endometriosis.

Congratulations Maryam and thanks to all the women who participated in the focus groups; your voices have been heard and ‘highly accessed’. You can read the published study for free online:

·         www.biomedcentral.com

February 2017: Thanks also to the women who helped with EIQ development and testing and those who completed the EIQ online (approx 1,000 women in Australia [70%] and worldwide [30%]). Publication of the EIQ validation has been submitted and publication of the EIQ data from 1,000 women will be published next.

Canberra Endometriosis (and Pelvic Pain) Network

facebook.com/endometriosiscanberra

facebook.com/groups/canberraendometriosisnetwork

Email: canberraendometriosisnetwork@gmail.com

Life with Endometriosis Photography project

This was launched at the Impact of Endometriosis Night held on 26 August 2014 at the Legislative Assembly and is still ongoing. Margaret prepared an audiovisual presentation that was featured at the Opening Ceremony of the 13th World Congress on Endometriosis in Vancouver, Canada 17-20 May, 2017. Thanks to all participating women in the Life with Endometriosis project and Margaret’s creativity! Your stories were shared with the world (and a lot of health professionals) through photography.

Life with Endometriosis photography project by local photographer Margaret Kalms:

Art of Woman website

YouTube video

Past events

Illuminating Endometriosis – Endometriosis Awareness Month

Illuminating Endometriosis was held on 19 March 2016 and was an information day focused on collaboration, empowerment and networking. A range of guest speakers covered topics including women’s and GP (General Practitioner) perspectives, pain with sex and challenges for intimacy, the bigger picture of pelvic pain (by Dr Susan Evans), the role of ultrasound (Drs Valeria Lanzerone and Uche Menakaya). The night finished with Skyfire and a lovely lakeside view of the fireworks from the National Museum of Australia.

Let’s Talk About Sex and Endometriosis

On 31 May 2016, the Canberra Endometriosis Network and Women’s Centre for Health Matters ran a great information night on this often overlooked topic with guest speakers Kate Fisher (Sex therapist) and Jane Keaney (Sex Therapist and Social Worker).

Pelvic Pain and Endometriosis Information Night

On Wednesday 30 of May, 2012, two Pelvic Pain and Endometriosis Information sessions were held at The Canberra Hospital Auditorium. The sessions were attended by 230 people.

The guest speaker was Dr Susan Evans who spoke about managing pelvic pain and endometriosis. Susan is the author of the book,Endometriosis and Pelvic Pain. Copies are available from the Endometriosis Centre or online from Dr Evans' website.

Local photographer Margaret Kalms, who has a genuine focus on women's health issues, also attended the Information Night and displayed some of her beautiful photos.

Blue Illusion Fundraiser for the Canberra Endometriosis Centre and Support Network

A number of fundraising events were held at Blue Illusion (Belconnen Mall) in as part of Endometriosis Awareness Month and fundraising. The latest fashions were modelled and money was raised for the Canberra Endometriosis Centre and Support Network. We wish to thank Blue Illusion for their ongoing support.

Leading Physician and Advanced Laparoscopic Surgeon

Dr. Omar Adham, Obstetrician and Gynaecologist, is an advanced laparoscopic surgeon and endometriosis specialist. He is best known to his patients for his friendly, down-to-earth, practical approach. He combines compassion and respect with the highest quality holistic care.

Service Location

Centenary Hospital for Women and Children, Building 11, Level 2, Cnr Gilmore Crescent and Hospital Road, Canberra Hospital.

Service Location Information

All ACT Health facilities are completely smoke free. All patients, visitors and staff are required to remain smoke free when visiting any ACT Health facility. Security officers will enforce the smoke free environment. Support is available to help smokers to stay smoke free during their visit to ACT Health facilities. For more information on quitting speak to your GP or Pharmacist.

Attending the Canberra Endometriosis Centre

The Centre is staffed by Gynaecologists trained in laparoscopic excision of endometriosis and a full time Endometriosis Nurse Coordinator and researcher, supported by other health professional groups such as pelvic physiotherapy, psychology, pain management unit, chronic pain specialists.

Not all women who attend the Centre will necessarily have a diagnosis of endometriosis however, painful periods and menstrual disturbance, pelvic pain and their management are also a key feature of the work of the Centre. Therefore the pathway through the services is a stepped approach and includes attending the group education session and a one on one visit with the Endometriosis Nurse Coordinator (not on the same day unless travelling from interstate). Following these, an appointment will be planned with the clinic doctors if required.

Canberra Endometriosis Centre Services

1. Group Endometriosis and Pelvic Pain Information Sessions

Group Endometriosis and Pelvic Pain Information Sessions are held monthly from 1pm - 3pm on a Wednesday at the Canberra Hospital.

All women wishing to access the Canberra Endometriosis Centre services are advised to attend the 2 hour information session first. A referral is not required to attend the information session, but is required to see the endometriosis specialist.

Teenagers and women who are seeing health professionals not linked with the Canberra Endometriosis Centre are still welcome to attend this comprehensive information session about diagnosis and long term management of period pain, pelvic pain and endometriosis.

Group Information Session Dates for 2018

  • 12 September 
  • 10 October 
  • 7 November 
  • 5 December

The session is free but please book on 02 6174 7625.

“The info session was great - very comprehensive and informative” - Susan.

2. One on one visit with Endometriosis Nurse Coordinator

The endometriosis Nurse Coordinator will conduct a one on one visit with you to take a detailed health history to determine the pain and symptoms you are experiencing, to explain the possible causes of the symptoms and create a tailored management plan with you.

“Thank you for seeing me yesterday. It was immensely helpful and I am feeling more at ease with my condition now that I have a few more answers and ideas for treatment” - Dannielle

3. Seeing a doctor

To see doctors through the Canberra Endometriosis Centre, a referral is required from your GP before an appointment can be made for the clinic. The referral can be faxed by your GP to the GOPD (Gynaecology Outpatient Dept) on 02 6244 3834 and marked “Attention Dr Omar Adham/Canberra Endometriosis Centre”.

Your referral will be triaged and you will be contacted by phone and an appointment offered to see the Endometriosis Nurse in the first instance. See the Canberra Endometriosis Centre Services information sheet below to read more about the pathway through the service.

You will be sent a letter confirming the appointment. If you have consented to SMS messages you will receive an SMS reminder.

Contact us

For Group Information Sessions: (02) 6174 7625
For Appointments: (02) 6174 7625
Endometriosis Co-ordinator (non-urgent enquiries): (02) 6174 7620
Fax for referrals: (02) 6244 3834

Email: endometriosis@act.gov.au

More Information

Canberra Endometriosis Centre Services 2018

Why do I have painful periods

Links

Painful periods and diagnosing endometriosis:

·         Jean Hailes Foundation

Endometriosis and other causes of pelvic pain:

·         Pelvic Pain Foundation of Australia

Comprehensive information:

·         Global Forum for Endometriosis

Information and fundraising:

·         Endometriosis Australia

Endometriosis activitists, information and support:

·         Endo Active

General youth health:

·         Reach out

Sexual health

·         Canberra Sexual Health Centre

Find a General Practitioner

·         Find a General Practitioner